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Ethics checklist
This simple questionnaire serves to assess whether your consent form is compliant with the minimal requirements for international data / sample sharing
Which ethics committee reviewed and approved this human subject research? Date of ethics board approval:
Data Sharing
Please indicate the terms of data sharing outlined in the consent documents. What type of research can be conducted on the data?
Consent limits use to study for which they were originally collected
Consent limits use to Parkinson’s disease research
Consent silent on future use
Other
Where can the research be conducted?
Consent limits use to PI/Institution at which the study was conducted
Consent explicitly allows sharing of data
Consent explicitly allows international sharing of data
Other
Sample Sharing
Please indicate the terms of sample sharing outlined in the consent documents. What type of research can be conducted with the samples?
Consent limits use to study for which they were originally collected
Consent limits use to Parkinson’s disease research
Consent silent on future use
Other
Where can the research be conducted?
Consent limits use to PI/Institution at which the study was conducted
Consent explicitly allows sharing of samples
Consent explicitly allows international sharing of samples
Other
Duration of storage
Is the duration of data storage limited?
Limited
Consent silent on duration of storage
Unlimited
Other
If storage duration is limited, when does it expire?
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